Tuesday, September 1, 2009

Another good day today!

Jonathan's flow is down to 2.5 already and he just keeps high satting (with the occasional minor desat thrown in). They both lovvvve the cannula. I haven't seen either desat below 70 since we switched. Talked to his doctor about what his expected plans are (and Sarah's should follow). They will try to get his flow down to 2 in the next couple of days, then move his feeding tube from intestines to his stomach. Then his feeds will gradually become shorter and shorter till he can tolerate a bolus feeding. Then we try bottle feeding! Around then I will get to start non-nutritive sucking at the breast with Sarah...I had to choose only one baby thanks to the ^%&* MRSA to breastfeed and chose the uncolonized one though really wish I could have chosen Jonathan as he is so much smaller. But I couldn't risk becoming colonized and somehow passing it on to Sarah.

Jonathan and I had two lovely snuggly sessions and Sarah did mostly well but decided both times after a half hour or so that it was time to get back in her bed. That's one huge benefit of Jonathan being in isolation - it's much quieter back there so easier for him to tolerate being out. Poor Sarah - when I got there all I did was open her isolette and put the cover up and she dropped 10+ points and desatted. Covered her and closed it and she immediately came back up. How more clearly could she have said "no thank you mama?"

They are such amazing babies. Both have already turned their head from one side to the other while on their tummy and love their hands (they will get them in their mouths soon)...both have huge, beautiful smiles (for me and for Gladys, their wonderful primary nurse)...and Sarah has also turned her head to track my voice and reached for the camera when I was recording her! Really amazing considering how tiny they were and still 7+ weeks premature. And on Thursday we are half way from birth till our due date. Grow babies grow!!

This has been a rough road but I am so grateful all is going well so far. So very grateful.

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