Hmm.....todays news. Jonathan is down to a flow of 2 already on his nasal cannula and doing well! Sarah is at 2 1/2 now and she too is doing well. I asked about Jonathan's cyst in his brain...it's exactly the same size and nothing else has changed, so good news there. The high points of the day were Sarah's first tub bath - she cried at first then settled down and seemed to enjoy it, or at least resign herself - and Jonathan smiled for the camera, twice. It's a little blurry but I will treasure these pictures. The LOW point: their primary nurse was at lunch (and I was pumping) when Jonathan's alarm went off. His heart rate was over 200 for at least 10 minutes and it was clear he was moving all over in there and no one did anything. >:( I had to ask a nurse to go in (I could not, or would not be able to go see Sarah at all that afternoon, but was at the point of making the sacrifice for my boy). I asked if she could comfort him and she basically said she was too busy. Then our wonderful nurse Gladys came back and went in and held him till he calmed down....a good 15 minutes. Why did all the nurses ignore his alarms? He's never even gone as high as 180 that I have seen before. It broke my heart. Other than that, it was yet another wonderful day. My babies are loving the high flow nasal cannula life!